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Why the public should be data research partners

Professor Sarah Cunningham-Burley offers insight into the benefits of involving the public in heath data research in an article in Healthandcare.scot.

The Usher Institute is committed to involving patients and the public meaningfully in all our research. 

Sarah Cunningham-Burley

New Consensus Statement

Professor Sarah Cunningham-Burley contributed to a recently-published new consensus statement on public involvement and engagement with data intensive health research - which included input from the four public panels of the Farr Institute of Health Informatics Research (2013-2018), one of which had been run from the Farr/Usher Institute here in Edinburgh.

Read the consensus statement in the  International Journal of Population Data Science here

Interview with Healthandcare.scot

Healthandcare.scot's Henry Anderson spoke to Professor Sarah Cunningham Burley to ask why the public should be data research partners.

Read about the interview in an article on the Healthandcare.scot website

National Standards for Public Involvement in Research

Flagship Patient and Public Involvement programmes based at the Usher Institute include the Asthma UK Centre for Applied Research Patient and Public Involvement Group.  This group is currently contributing as a test bed site implementing new National Standards for Public Involvement in Research.

Read more about the Asthma UK Centre for Applied Research PPI Group - test bed site to implement new National Standards for Public Involvement in Research