Asthma UK Centre for Applied Research

Privacy Statement

The Asthma UK Centre for Applied Research Privacy Statement

The Asthma UK Centre for Applied Research Privacy Statement

Updated 12 August 2021

Who we are

The Asthma UK Centre for Applied Research (AUKCAR) is a virtual Centre led by The University of Edinburgh funded by Asthma UK. It consists of the University of Edinburgh with 12 partner universities, which are: Queen Mary University of London, Imperial College London, King’s College London, Queen’s University Belfast, Swansea University, University College London, University of Aberdeen, University of East Anglia, University of Leeds, University of Oxford, University of Sheffield, and University of Southampton; and 5 affiliate universities, which are University of Exeter, University of Leicester, University of Liverpool, University of Manchester and University of Nottingham. Roles and responsibilities for delivering the Centre’s work and organising training and events can be allocated across these universities.

For data collected under this Privacy Statement, the University of Edinburgh is the Data Controller (as that term is defined in the EU General Data Protection Regulation (EU) 2016/679), registered with the Information Commissioner’s Office, Registration Number Z6426984. Where data collected is related to the Post Graduate Training Programme, The University of Edinburgh is joint Data Controller with Swansea University.

You can contact our Data Protection Officer at

Our data protection policy is on our website at

The University of Edinburgh’s website privacy policy is located at:

What information is collected by the AUKCAR and how do we use it?

  • Details of members and former members of the AUKCAR for the website ( to explain our work to others, and for reporting to our funders.
  • Details of PhD students and Early Career Researchers, including work emails and research projects, for the delivery of the Post Graduate Training Programme.
  • Personal details (including: name, email address, work organisation, dietary requirements) for those who attend / speak at / facilitate any of our meetings, including the Annual Scientific Meeting, seminars, webinars, training events and educational workshops. If you are an attendee, speaker or facilitator, we will use your information to provide you with the details you need to attend the event and allow strategic planning of future events. If you are a speaker/facilitator, we will also use your information to promote the event and inform others about the content.
  • Video recordings and photography from our events, which may be online or in person. Video recordings of content presented at events may be published on YouTube and shared on social media. Photographs from events may be used in promotional material or presentations about the AUKCAR and shared on social media. We will always notify participants if an event is being recorded and/or if photographs will be taken. If it is an online event, we will clarify the use of the recording and allow people to leave the event or turn off their camera if they do not wish to be filmed or photographed. If the event is in person, we will ask you to inform one of the organisers at the event if you do not wish to be filmed or photographed.
  • Posting images and/or video on our YouTube or social media channels constitutes international transfer of data. This will only be done with explicit consent of the individual(s) concerned.   
  • Personal details (including: name, email address, work organisation) for Centre members and for non-members when they sign up to receive our Centre Newsletter. We will use this information to send you our Newsletter and notify you of future events or other relevant news and opportunities from our networks (e.g. publication of videos, information on research projects, conferences). These are core functions of the AUKCAR.
  • Any information you post, email or otherwise send to us. We will use this information to reply to you and to keep records of what we say.
  • IP address, operating system and browser information where this is available for visitors to our website. For more information on our use of cookies and details of how the University of Edinburgh is committed to preserving your privacy, please see the Privacy and cookie Policy information webpages.

We do not use profiling or automated decision-making processes.  A human decision maker will always be involved before any decision is reached in relation to you.

Personal information collected for our Patient and Public Involvement activities has a separate privacy statement.

Legal basis for using your information

Whenever we use personal data we must have a legal basis for doing so. The legal basis for using your information will normally be legitimate interest, for the day-to-day running of the AUKCAR. We may also process your information under the legal basis of contract, where this processing is necessary for a contract you have with us.

How we store and share your personal information

University staff working for the AUKCAR in administration, Centre management and communications will have access to your personal information. Information about you will be stored securely with controlled access.

Information that you share with us may be processed by the following 3rd Parties, when their services are required to deliver our events or other work (e.g. catering at an external venue, printing for event materials, travel bookings or reimbursements, photography, funding).

  • Other departments and services within the University of Edinburgh or Swansea University (e.g. IT, catering, reprographics);
  • Other participating academic institutions in the AUKCAR, where they are delivering work for the Centre (e.g. events);
  • The University of Edinburgh’s approved travel provider (currently Key Travel) for the purposes of making travel and accommodation arrangements;
  • The University of Edinburgh’s international banking payments provider (currently Santander) for non-staff international payments;
  • Co-hosts of events and conferences;
  • Videography and photography companies;
  • Research funding bodies (e.g. for reporting or audit of financial records);
  • Eventbrite and Zoom for event registrations; and
  • Dotmailer for newsletters and mailings.

Personal data will not be shared with external service providers other than those acting on the instructions of the University of Edinburgh or Swansea University. Where this is the case, a written contract will be put in place with the provider to set out the purposes for which the information can be used and the security measures that must be in place. This contract will ensure that the service provider agrees never to use your data for any additional purposes not set out in the agreement.

Otherwise, unless required to do so by law, we will not share, sell or distribute any of the information you provide to us without your consent.

How long will your information be held?

Whenever we collect or process your personal data, we’ll only keep it for as long as is necessary for the purpose for which it was collected and so we can comply with our legitimate and contractual obligations. At the end of that retention period, your data will either be deleted completely or anonymised, for example by aggregation with other data so that it can be used in a non-identifiable way for statistical analysis and business planning.

In the case of subscribed services such as the Centre newsletter and member mailing lists, we will review all list members at least once a year. If anyone leaves the Centre, we will remove them from our list. You can opt out of our mailing lists at any time.

We will retain personal information about Centre members as long as it is required to manage the grant and comply with funder reporting requirements.

Your data protection rights

Under data protection law, you have rights including:

Your right of access - You have the right to ask us for copies of your personal information.

Your right to rectification - You have the right to ask us to rectify personal information you think is inaccurate. You also have the right to ask us to complete information you think is incomplete.

Your right to erasure - You have the right to ask us to erase your personal information in certain circumstances.

Your right to restriction of processing - You have the right to ask us to restrict the processing of your personal information in certain circumstances.

Your right to object to processing - You have the right to object to the processing of your personal information in certain circumstances.

Your right to data portability - You have the right to ask that we transfer the personal information you gave us to another organisation, or to you, in certain circumstances.

You are not required to pay any charge for exercising your rights. If you make a request, we have one month to respond to you.

Please contact us at if you wish to make a request.

How to complain

If you have any concerns about our use of your personal information, you may in the first instance contact the University Data Protection Officer at

If you remain dissatisfied then you have the right to apply directly to the Information Commissioner for a decision. The Information Commissioner can be contacted at:

Information Commissioner’s Office

Wycliffe House

Water Lane




Helpline number: 0303 123 1113

ICO website: