Tracy Jackson

Project: Asthma UK Centre for Applied Research Patient and Public Involvement

Patient and Public Involvement (PPI) is essential in producing high-quality research that is of benefit to the people it impacts and at the Asthma UK Centre for Applied Research, we keep people impacted by asthma at the centre of all we do.

The Centre was a pilot site for the NIHR UK Standards for Public Involvement in Research and we continue to undertake best practice in PPI.  Working with PPI members, we have produced resources to guide PPI collaboration in research.  I contribute to research designs and grant applications, develop plain English summaries, create PPI strategies, provide guidance on meaningfully involving PPI in research, coordinate a range of PPI activities, and evaluate and measure the impact of PPI. 

I collaborate with PPI members to co-produce research that matters to people impacted by asthma.  Most recently this involved a project exploring older adults’ experiences of living with asthma for which we won 'Most Patient-Centred Poster' at the Primary Care Respiratory Society (PCRS) Respiratory Conference in 2020.

Find out more about Patient and Public Involvement at the Centre

About me

I lead on Patient and Public Involvement for the Centre and the flagship project IMPlementing IMProved Asthma self-management as RouTine.  I am also the PPI Respiratory Lead for the Usher Institute at the University of Edinburgh managing a team of PPI research and professional services staff and leading on PPI and Community Engagement and Involvement in a number of projects, units and centres.

I work with researchers to ensure patient, public and community members are meaningfully involved in research.  I have a background in health psychology and believe that Patient and Public Involvement is essential to producing high-quality health research that is relevant to the people it impacts.

Project: IMP²ART

NIHR Global Health Research Unit on Respiratory Health

Publications

• Tracy Jackson, Kirstie McClatchey, Amy Hai Yan Chan, Noelle Morgan, Emma Kinley & Hilary Pinnock (2023) Psychological impact of the COVID-19 pandemic on people with asthma: a co-produced mixed-methods study, Psychology & Health. doi: 10.1080/08870446.2023.2256784 
• Patterson L, Berry E, Parsons C, Clarke B,  Little A, Beggs J, Chuter A, Jackson T et al. Using the COM-B framework to elucidate facilitators and barriers to COVID-19 vaccine uptake in pregnant women: a qualitative study. BMC Pregnancy Childbirth 23, 640 (2023). doi: 10.1186/s12884-023-05958-y 
• McClatchey K, Hammersley V, Steed L, Sheringhal J, Marsh V, Barat A, Delaney B, Hamborg T, Fitzsimmons D, Holmes S, Jackson T. IMPlementing IMProved Asthma self-management as RouTine (IMP2ART) in primary care: study protocol for a cluster randomised controlled implementation trial. Trials. 2023 Apr 3;24(1):252. doi: 10.1186/s13063-023-07253-9
• Ryan E, Hore K, Power J, Jackson T. The relationship between physician burnout and depression, anxiety, suicidality and substance abuse: A mixed methods systematic review. Frontiers in public health. 2023 Mar 30;11;1133484. doi: 10.33889%2Ffpubh.2023.1133484
• De Simoni A, Jackson T, Inglis Humphrey W, Preston J, Mah H, Wood HE, Kinley E, Gonzalez Rienda L, Porteous C. Patient and public involvement in research: the need for budgeting PPI staff costs in funding applications. Research involvement and engagement. 2023 Mar 25;9(1):16. doi: 10.1186/s40900-023-00424-7
• Jefferson E, Cole C, Mumtaz S, Cox S, Giles TC, Adejumo S, Urwin E, et al. A hybrid architecture (CO-CONNECT) to facilitate rapid discovery and access to data across the United Kingdom in response to the COVID-19 pandemic: development study. Journal of medical Internet research. 2022 Dec 27;24(12):e40035. doi: 10.2196/40035
• Ryan D, Keighley A, Jackson T. Patient perspectives in asthma: Listening to and learning from a new paradigm in translational research. Respiratory Medicine. 2022 Dec 1;205. doi: 10.1016/j.rmed.2022.107013. 
• Khoo EM, Abdullah A, Liew SM, Hussein N, Hanafi NS, Lee PY, Abdullah KL, Vengidasan L, Abu Bakar AI, Pinnock H, Jackson T. Psychological health and wellbeing of primary healthcare workers during COVID-19 pandemic in Malaysia: a longitudinal qualitative study. BMC Primary Care 2022 Dec;23(1):1-0. doi: 10.1186/s12875-022-01870-0
• Uzzaman MN, Agarwal D, Chan SC, Engkasan JP, Habib GM, Hanafi NS, Jackson T, et al. Effectiveness of home-based pulmonary rehabilitation: systematic review and meta-analysis. European Respiratory Review. 2022 Sep 30;31(165). doi: 10.1183/16000617.0076-2022
• Fernandes G, Jackson T, Kashif A, Rahman AE, Roy AK, Asmd AI,Paul B et al. Sustaining stakeholder engagement for health research during the COVID-19 pandemic: Lessons from the REspire programme in Bangladesh, India, Malaysia, and Pakistan. Journal of Global Health. 2022;12. doi: 10.7189/jogh.12.03057
• Jackson T, Flinn F, Rafferty L, Ehrlich E, Fletcher M. Exploring the experiences of older adults living with asthma in the United Kingdon: a co-produced qualitative study. Aging and Health Research. 2022 May 22:100079. doi: 10.1016/j.ahr.2022.100079
• Jackson, Steed L, Pedruzzi RA, Beyene K, Chan AHY, editors. COVID-19 and Behavioural Sciences [eBook]. Lausanne: Frontiers Media SA; 2022
• Rodriguez A, Tuck C, Dozier MF, Lewis SC, Eldridge S, Jackson T, Murray A, Weir CJ. Current recommendations/practices for anonymising data from clinical trials in order to make it available for sharing: A scoping review. Clin Trials. 2022;19(4):452-463. doi:10.1177/17407745221087469
• Jackson T, Williams S, Fernandes G.  Engaging stakeholders and communities to improve respiratory health in Asia. Journal of Global Health 2022; 12: 01001. doi: 10.7189/jogh.12.01001
• Rahman AE, Jabeen S, Fernandes G, Banik G, Islam J, Ameen S, Ashrafee S, Hossain AT, Alam HMS, Majod T, Saberin A, Kabir ANME, Chisti MJ, Ahmed S, Khan M, Jackson T et al.  Feasibility of introducing pulse oximetry in routine IMCI services in Bangladesh: Stakeholder engagement process, achievements, and lessons learned. Journal of Global Health 2022; 12: 06001. doi: 10.7189%2Fjogh.12.06001
• Pearce CJ, Chan AHY, Jackson T, Fleming L, Foot H, Bush A, Horne, R.  Features of successful interventions to improve adherence to Inhaled Corticosteroids in children with asthma: A narrative systematic review. Pediatric Pulmonology 2022;1-26. doi: 10.1002%2Fppul.25838
• Chan SC, Sekhon JK, Engkasan JP, Nathan JJ, Mirza FT, Liew SM, Hussein N, Suhaimi A, Hanafi NS, Pang YK, Yatim SM, Jackson T et al. Barriers and Challenges of Implementing Pulmonary Rehabilitation in Malaysia: Stakeholders’ Perspectives.  Journal of Global Health 2021;11:02003. doi: 10.7189/jogh.11.02003
• Uzzaman MN, Chan SC, Shunmugam RH, Engkasan JP, Agarwal D, Habib GMM, Hanafi NS, Jackson T et al.  Clinical effectiveness, and components of home-pulmonary rehabilitation for people with chronic respiratory diseases: A systematic review protocol. BMJ Open 2021;11:e050362. doi: 10.1136/bmjopen-2021-050362
• Patil R, Agarwal D, Kaur H, Gadgil M, Jackson T, Fernandes G, Juvekar S.  Engaging with stakeholders for community-based health research in India:  lessons learned, challenges and opportunities. Journal of Global Health 2021; 11. doi: 10.7189%2Fjogh.11.03072
• McClatchey K, Jackson T, Delaney B, Morgan N, Pinnock H, Chan AH. COVID-19 information for people living with asthma: A rapid review of publicly available information. The Journal of Allergy and Clinical Immunology: In Practice. 2021 May 1;9(5):2070-2. doi: 10.1016%2Fj.jaip.2021.01.003
• Uzzaman MN, Jackson T, Uddin A, Rowa-Dewar N, Chisti MJ, Habib GMM, Pinnock H.  Continuing professional education for general practitioners on chronic obstructive pulmonary disease: feasibility of a blended learning approach in Bangladesh.  BMC Family Practice. 2020 Sept; 21(203). doi: 10.1186/s12875-020-01270-2
• Jackson T, Pinnock H, Liew SM, Horne E, Ehrlich E, Fulton O, Worth A, Sheikh A, De Simoni A. Patient and public involvement in research: from tokenistic box ticking to valued team members. BMC medicine. 2020 Feb;18(1):1-7. doi: 10.1186/s12916-020-01544-7
• Jackson T, Shields MD, Heaney LG, Kendall M, Hui CY, Pearce CJ, Pinnock H. The impact of financial incentives on the implementation of asthma or diabetes self-management: A systematic review. PLoS ONE. 2017 Nov; 12(11). doi: 10.1371/journal.pone.0187478
• Hui CY, Walton R, McKinstry B, Jackson T, Parker R, Pinnock H. The use of mobile applications to support self-management for people with asthma: a systematic review of controlled studies to identify features associated with clinical effectiveness and adherence. Journal of the American Medical Informatics Association. 2016 Oct 2;24(3):619-32. doi: 10.1093/jamia/ocw143

Research Activity

Over 40 abstract presentations at national and international conferences (International Primary Care Respiratory Group (IPCRG) World Conference; European Respiratory Society (ERS) International Congress; Primary Care Respiratory Society UK (PCRS-UK) Conference; Pioneering Partnerships Summit; International Population Data Linkage Network Conference) (2015-2023).

Acknowledgements

Many thanks to all the patients, public and community members who work together with us to ensure we produce research that is important to the people it impacts.

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