Get Involved in CARE

If you are interested in learning more, please read the relevant information leaflets below. The short information leaflets provide a brief summary of the study and what’s involved. The supplementary information leaflets expand on this information.        

• For adult patients

  • CARE - Short PIL (Adult) V1.0 28Jan2021 (667.65 KB PDF)
  • CARE - Supplementary PIL (Adult) V2.0 22Mar2021 (1.2 MB PDF)

• For parents and guardians of paediatric patients

  • CARE - Short PIL (Parent Guardian) V1.0 28Jan2021 (694.97 KB PDF)
  • CARE - Supplementary PIL (Parent Guardian) V2.0 22Mar2021 (1.21 MB PDF)
  • CARE - Young Persons PIL AF (11-15yrs) V1.0 08Dec2020 (646.48 KB PDF)
  • CARE - Childrens 6-10 years PIL AF V1.0 08Dec2020 (621.92 KB PDF)
  • CARE - Childrens 0-5 years PIL V1.0 07Dec2020 (351.83 KB PDF)

If after you have read the information leaflets, you have questions or would like to discuss taking part in the study, please contact the Cavernoma Alliance UK helpline team using the details below:

Email: CARE@cavernoma.org.uk

Tel: 01305 213 876

Patient FAQs

An additional FAQ document is available on the CAUK website. This document was created in collaboration with CAUK and the QRI team integrated into the CARE trial. This document should have some further info useful for patients and carers.

https://cavernoma.org.uk/care-study/faq/   

People from Ireland may use the email or phone contacts below for Cavernoma Ireland:

Cavernoma Ireland - cavernomaireland@gmail.com / +44 1305 213 876 

(the phone line may incur international charges. If you wish to have a phone conversation, you may prefer to make first contact by email and give a phone number. You will then be contacted by phone.)

Are you a clinician or clinical researcher in the UK or Ireland interested in the CARE study? Please get in touch directly at care.trial@ed.ac.uk