Digital tool launched to help people through grief

A bank of personal stories, wellbeing exercises and practical tools to help support people after bereavement has been developed by Edinburgh researchers.

person in a yellow jumper typing on a keyboard

The web-based resource – called My Grief My Way – provides self-help support solutions for people who are grieving.

The online hub has been developed using evidence of the common experiences that people encounter after losing someone important to them, and of what helps people to recover or heal after loss.

Self-guided resource

The free resource gives people immediate access to support from any location, which they can work through at their own pace.

More than 3.5m people are bereaved in the UK each year, typically 60 per cent of people who are bereaved adjust with support from family and friends. However, around 40 per cent need additional support, yet service availability is inconsistent across the UK, and timely access to this is limited, experts say.

Through My Grief My Way people have access to a bank of short videos from people sharing their experiences of what helped them cope after loss, as well as soothing images, poetry, practical exercises and support for living with grief.

Signposts to support

It also directs people to information sources on some of the practical impacts of bereavement such as loss of income, disrupted sleep and lack of self-care.   

The team developed the content around the principles of Acceptance and Commitment Training (ACT) which helps people improve their mental health by changing how they respond to their thoughts and feelings.

The end-of-life charity Marie Curie and Cruse Scotland also guided aspects of the work, as well as individuals with experience of bereavement who shared their feedback. Bereavement support volunteers from both charities were trained in the principles of ACT, so they could incorporate ACT into their usual bereavement support practices, and signpost people to My Grief My Way.

Support and care

My Grief My Way was tested with 27 people who had been bereaved, and who accessed the hub over an eight-week period. The majority perceived the hub as a positive experience, finding it supportive and caring, providing a sense of community and helping with coping skills. They found it easy to use, and valued its flexibility and accessibility. For many, using My Grief My Way was related to improvements in overall wellbeing.

Through My Grief My Way we seek to enable those who have experienced bereavement to learn a set of skills and practices that will support them with their grief. These practices enable people to find new ways to handle difficult feelings, thoughts, and memories, while at the same time gently supporting people to explore what matters to them, and how to continue to find purpose and meaning, after significant loss. We look forward to further developing and evaluating our resource in the future.

The essence of our approach is that grieving is natural and healthy, even though it feels very painful at times. Our research shows that online interventions have a role to play in improving access to bereavement support. Further research could help whether certain populations might benefit more from engagement with the website than others.

The researchers are developing a University of Edinburgh short course to support the use of My Grief My Way, which will launch in the Autumn.

The team have also received some funding from Dementia UK, which they will use to develop some resources on anticipatory grief – which people can experience before a loss happens.

The study is published in the Journal Progress and Palliative Care. It was funded by Marie Curie and an ESRC Impact Accelerator grant.

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