The plea comes as a study reveals that more than half (57 per cent) of people with Crohn’s disease or ulcerative colitis – collectively known as inflammatory bowel disease (IBD) – were admitted to hospital between 2010 and 2019.
The rate of hospitalisations has fallen three per cent every year, which researchers suggest is down to more readily accessible treatments and better public awareness of the disease.
However, experts say now is the time to invest even more to improve the lives of people with the condition, and to ease the burden on the NHS.
Support needed
Statistics from a database of 4,500 IBD patients across NHS Lothian reveal they were in hospital for a combined total of 160,000 days.
Just three per cent of patients accounted for almost 50 per cent of those days. These patients have often run out of treatment options and have to deal with a signcifant impact on their quality of life, researchers say.
The study team from the University of Edinburgh believe greater access to psychological and dietary support should be a priority for this most vulnerable group.
Infections
The study also showed that a small number of patients with IBD get severe infections each year, resulting in death or admission to intensive care.
Researchers say these rates have not changed over time and do not appear to be related to treatment.
IBD is a lifelong, debilitating condition with no known cure. It can cause pain, cramps and swelling in the tummy as well as daily symptoms such as diarrhoea, weight loss and extreme fatigue. It can have a significant impact on work, family and personal relationships.
The cause is unknown, but it is thought to result from an overactive gut immune response in people who are genetically predisposed to the condition. The makeup of gut bacteria and diet may also play an important role.
The study was published in the journal Alimentary Pharmacology and Therapeutics.