Primary Palliative Care Research Group
Primary Palliative Care Research Group
Usher Institute
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Recent publications

A list of key publications from the Primary Palliative Care Research Group

2024

Publications:

  • Murray SA, Boyd K, Moine S, Kendall M, Macpherson S, Mitchell G, Amblàs-Novellas J. Using illness trajectories to inform person centred, advance care planning. BMJ 2024; 384 :e067896 doi:10.1136/bmj-2021-067896

2023

Publications:

  • Canny, A., Mason, B. & Boyd, K. Public perceptions of advance care planning (ACP) from an international perspective: a scoping review. BMC Palliative Care 22, 107 (2023). https://doi.org/10.1186/s12904-023-01230-4

  • Canny A, Mason B, Atkins C, Patterson R, Moussa L, Boyd K. Online public information about advance care planning: An evaluation of UK and international websites. Digit Health. 2023 Jun 22;9. doi: 10.1177/20552076231180438.

  • Kamita LM, Murray SA, Njiru L, et al. Palliative care inpatient needs: supportive and palliative care indicator tool survey in Kenya. BMJ Supportive & Palliative Care Published Online First: 04 August 2023. doi: 10.1136/spcare-2023-004491

2022

Publications:

  • Canny A, Mason B, Stephen J, Hopkins S, Wall L, Christie A, Skipworth R, Bowden J, Graham L, Kendall M, Weir C, Boyd K. Advance care planning in primary care for cancer patients: Feasibility randomised trial. British Journal of General Practice 29 March 2022; BJGP.2021.0700. DOI: 10.3399/BJGP.2021.0700

  • Mason B, Carduff E, Laidlaw S, Kendall M, Murray SA, Finucane A, Moine S, Kerssens J, Stoddart A, Tucker S, Haraldsdottir E, Ritchie L, Fallon M, Keen J, Macpherson S, Moussa K, Boyd K. Integrating lived experiences of out-of-hours health services for people with palliative and end-of-life care needs with national datasets for people dying in Scotland in 2016: A mixed methods, multi-stage design. Palliative Medicine. 2022; 36(3):478-488. doi: 10.1177/02692163211066256

  • Krause R, Barnard A, Burger H, de Vos A, Evans K, Farrant L, Fouche N, Kalula S, Morgan J, Mohamed Z, Panieri E, Ras T, Raubenheimer P, Verburg E, Boyd K, Gwyther L. (2022). A Delphi study to guide the development of a clinical indicator tool for palliative care in South Africa. African Journal of Primary Health Care & Family Medicine, 14(1), 7 pages. https://doi.org/10.4102/phcfm.v14i1.3351

  • Mitchell S, Harrison M, Oliver P, Gardiner C, Chapman H, Khan D, Boyd K, Dale J, Barclay S, Mayland CR. Service change and innovation in community end-of-life care during the COVID-19 pandemic: Qualitative analysis of a nationwide primary care survey. Palliative Medicine 2022. 36(1):161-170. doi: 10.1177/02692163211049311. 

  • Sanderson EAM, Humphreys S, Walker F, Harris D, Carduff E, McPeake J, Boyd K, Pattison N, Lone NI. Risk factors for complicated grief among family members bereaved in intensive care unit settings: A systematic review.PLoSONE 2022:17(3):e0264971. https://doi.org/10.1371/journal.pone.0264971

  • Sallnow L, Smith R, Ahmedzai SH, et al. Report of the Lancet Commission on the Value of Death: Bringing death back into life. January 31, 2022. https://doi.org/10.1016/S0140-6736(21)02314-X

  • Canny A, Mason B, Patterson R, Boyd K. ‘ACP, what’s that?’ Exploring public perceptions of advance/anticipatory care planning in research, among citizens and online. BMJ Supportive & Palliative Care 2022; 12 (Suppl 1): A16-A17. http://dx.doi.org/10.1136/spcare-2021-MCRC.40

  • Mason B, Carduff E, Laidlaw S, et al. Dying out of hours: no time to die. BMJ Supportive & Palliative Care Jan 2022, 12 (Suppl 1) http://dx.doi.org/10.1136/spcare-2021-MCRC.1

2021

Publications:

  • Finucane A, Mason B, Boyd K, Advance care planning for emergencies in care homes: meaningful conversations and trusting relationships matter, Age and Ageing, 2021, https://doi.org/10.1093/ageing/afab159
  • Mason B, Boyd K, Doubal F, Barber M, Brady M, Cowey E, Visvanathan A, Lewis S, Gallacher K, Morton S, Mead GE. Core Outcome Measures for Palliative and End-of-Life Research After Severe Stroke: Mixed-Method Delphi Study. Stroke. 2021 Jul 16:STROKEAHA120032650. doi: 10.1161/STROKEAHA.120.032650. Epub ahead of print. PMID: 34266306.

  • Mitchell S, Oliver P, Gardner C, Chapman H, Khan D, Boyd K, Dale J, Barclay S, Mayland C. Community end-of-life care during COVID-19: Findings of a UK primary care survey. BJGP Open 2021. https://doi.org/10.3399/BJGPO.2021.0095

  • Murray S, Amblàs J. Palliative care is increasing, but curative care is growing even faster in the last months of life. British Journal of General Practice 2021; 71 (710): 410-411. DOI: 10.3399/bjgp21X716921

  • Mayes J, McLachlan S, Carduff E, McPeake J, Boyd KJ, Pattison N, Lone N. Deaths in critical care and hospice-prevalence, trends, influences: a national decedent cohort study. BMJ Support Palliat Care. 2021 Aug 11:bmjspcare-2021-003157. doi: 10.1136/bmjspcare-2021-003157. Epub ahead of print. PMID: 34380665.

  • Finucane A, Carduff E, Meade R, et al. Palliative care research promotion in policy and practice: a knowledge exchange process. BMJ Supportive & Palliative Care. Published Online First: 16 August 2021. doi: 10.1136/bmjspcare-2021-003096

  • McKinnon C, Nandhabalan M, Murray S A, Plaha P. Glioblastoma: clinical presentation, diagnosis, and management BMJ 2021; 374 :n1560 doi:10.1136/bmj.n1560
  • Hockley, J, Hafford-Letchfield, T, Noone, S, Mason, B, Jamieson, L, Iversholt, R, Musselbrook, K, Palattiyil, G, Sidhva, D, Quinn, N, Jain, S, McKie, L and Tolson, D. 2021. COVID, Communication and Care Homes: A Staffs’ Perspective of Supporting the Emotional Needs of Families. Journal of Long-Term Care, (2021), pp. 167–176. https://doi.org/10.31389/jltc.74  

  • Finucane AM, Bone AE, Etkind S, et al. How many people will need palliative care in Scotland by 2040? A mixed-method study of projected palliative care need and recommendations for service delivery. BMJ Open 2021;11:e041317. doi: 10.1136/bmjopen-2020-041317

  • Finucane AM, Swenson C, MacArtney JI, Perry R, Lamberton H, Hetherington L, Graham-Wisener L, Murray SA, Carduff E. What makes palliative care needs 'complex'? A multisite, sequential, explanatory, mixed-methods study of patients referred for palliative care. BMC Palliat Care. 2021 Jan 15; 20(1):18. doi:10.1186/s12904-020-00700-3

  • Murray SA. Integrating palliative care as health promotion in primary care consultations: the exceptional potential in each primary care consultation. Posted by BJGP Life | 5 Apr 2021 

  • Kaneko M, Oishi A, Sawa N, Irving G, Fujinuma Y. Perspectives on expert generalist practice among Japanese family doctor educators: a qualitative study. BJGP Open. 2021 May 18:BJGPO.2021.0011. doi: 10.3399/BJGPO.2021.0011. Epub ahead of print. PMID: 33849894.

  • Sundararaj JJ, Munday D, Duomai S, John P, Priscilla S RA, Powys R, Singh A, Boyd KJ, Grant L, Murray SA. COVID-19 and palliative medicine: faith-based hospitals in India. BMJ Support Palliat Care. 2021 Apr 16:bmjspcare-2021-002924. doi: 10.1136/bmjspcare-2021-002924.

2020

Publications:

  • Mason B, Kerssens JJ, Stoddart A, Murray SA, Moine S, Finucane AM, Boyd K. Unscheduled and out-of-hours care for people in their last year of life: a retrospective cohort analysis of national datasets. BMJ Open 2020;10:e041888, doi: 10.1136/bmjopen-2020-041888  

  • Finucane A, Davydaitis D, Horsman Z, Carduff E, Baughan P, Tapsfield J, Spiller J, Meade R, Lydon,B, Thompson I, Boyd K, Murray S. Electronic care coordination systems for people with advanced progressive illness: a mixed-methods evaluation in Scottish primary care. British Journal of General Practice 2020; 70 (690): e20-e28. https://doi.org/10.3399/bjgp19X707117

  • Van den Block L, Honinx E., Hockley J et al. Evaluation of a Palliative Care Program for Nursing Homes in 7 Countries: The PACE Cluster-Randomized Clinical Trial. JAMA Internal Medicine 2020. 180(2):233–242, doi:  10.1001/jamainternmed.2019.5349   

  • Alcorn G, Hockley J, Murray S. Care home residents who die in hospital: exploring factors, processes and experiences. Age & Ageing 2020; 49(3): 468–480. https://doi.org/10.1093/ageing/afz174

2019

Key publications:

2018

Key publications:

2017

Key publications:

2016

Key publications:

2015

Key publications:

Other key publications

  • Highet G, Crawford D, Murray SA, Boyd K.  Development and evaluation of the Supportive and Palliative Care Indicators Tool (SPICT): a mixed-methods study.  BMJ Supportive & Palliative Care, 2014;4(3):285-90.
  • Denvir MA, Highet G, Robertson S, Cudmore S, Reid J, Ness A, Hogg K, Weir C, Murray SA, Boyd K. Future Care Planning for patients approaching end-of-life with advanced heart disease BMJ Open, BMJ Open 2014;4:e005021. doi: 10.1136/bmjopen-2014-005021
  • Daveson BA, Harding R, Shipman C, Mason B, Epiphaniou E, Higginson I, Ellis-Smith C, Henson L, Munday D, Nanton V, Dale J, Boyd K, Worth A, Barclay S, Donaldson A & Murray SA.  The real-world problem of care coordination: A longitudinal qualitative study with patients living with advanced progressive illness and their unpaid caregivers.  Plos One, 2014, 9:5. https://doi.org/10.1371/journal.pone.0095523
  • Maas EA, Murray SA, Engels Y & Campbell C. What tools are available to identify patients with palliative care needs in primary care: a systematic literature review and survey of European practice.  BMJ Supportive and Palliative Care, 2013; 3:444-451. https://doi.org/10.1186/s12875-015-0312-z
  • Mason B, Epiphaniou E, Nanton V, Donaldson A, Shipman C, Daveson BA, Harding R, Higginson I, Barclay S, Boyd K, Dale J, Kendall M, Woth A & Murray SA.  Coordination of care for individuals with advanced progressive conditions: a multi-site ethnographic and serial interview study.  BJGP, 2013;63(613):e580-e8. doi:10.1371/journal.pone.0095523
  • Pinnock H, Kendall M, Murray SA, Worth A, Levack P, Porter M, MacNee W & Sheikh A.  Living and dying with severe chronic obstructive pulmonary disease: multi-perspective longitudinal qualitative study.  BMJ 2011;342:d142. https://doi.org/10.1136/bmj.d142
  • Murray SA, Kendall M, Boyd K, Grant E, Highet G & Sheikh A.  Archetypal trajectories of social, psychological and spiritual wellbeing and distress in family caregivers of patients with lung cancer: secondary analyses of serial qualitative interviews.  BMJ 2010;304:c2581. https://doi.org/10.1136/bmj.c2581 
  • Murray SA, Kendall M, Carduff E, Worth A, Harris FM, Lloyd A, Cavers D, Grant L and Sheikh A.  Use of serial qualitative interviews to understand patients’ evolving experiences and needs.  BMJ 2009;339:b3702. https://doi.org/10.1136/bmj.b3702 

  • Murray SA, Kendall M, Boyd K, Sheikh A.  Illness trajectories and palliative care. Clinical Review. BMJ 2005; 330:1007-11.  https://doi.org/10.1136/bmj.330.7498.1007

  • Murray SA, Grant E, Grant A & Kendall M.  Dying from cancer in developed and developing countries: lessons from two qualitative interview studies of patients and their carers.  BMJ 2003;326:368-72. https://doi.org/10.1136/bmj.326.7385.368

  • Murray SA, Boyd K, Kendall M, Worth A, Benton TF & Clausen H.  Dying of lung cancer or cardiac failure: prospective qualitative interview study of patients and their carers in the community.   BMJ 2002;325:929-32. https://doi.org/10.1136/bmj.325.7370.929

 

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