How UK Universities Are Using Patient Data in Research
#DataSavesLives launched animation video
Tuesday 17 April 2018
A new animation has been created to answer questions about the use of patient data by UK universities, researchers and scientists.
Produced in collaboration with patients and members of the public by Connected Health Cities and The Farr Institute of Health Informatics Research, the 3-minute animated film has been designed to increase public awareness of how routinely collected NHS data is safely and securely re-used by universities for health research.
The animation takes viewers on a journey to understand how patient data is created and shared and the important role it plays in research to improve the health of patients and populations. Examples are highlighted with relevant case studies and the measures that universities must take to ensure patient data is protected and accessed is explained.
The animation forms part of the #DataSavesLives campaign that has been supported by Connected Health Cities, The Farr Institute and the Innovative Healthcare Delivery Programme since it was launched by The University of Manchester in 2015.
We developed the animation with patients and members of the public from across the UK. It’s really important to both organisations that we listen to what the public have to say on the subject of health data sharing and this approach is embedded into our research.
The #DataSavesLives campaign is a plain-English way of talking about health data science research and the positive impacts it has on patients and society. It helps us build public trust around using patient data in research and allows us to highlight the work being done that really is helping to save lives. Social media is a powerful tool. The #DataSavesLives campaign has created a direct channel of communication between health data professionals and the public and is now used by organisations across the world, united in supporting the re-use of data for research.
The animation can be viewed at www.datasaveslives.info.
For more information or to request a media pack, please contact Stephen Melia (email@example.com) or Cherry Martin (firstname.lastname@example.org)
Information about Connected Health Cities and The Farr Institute
Connected Health Cities Connected Health Cities (CHCs) safely and securely combines population data and technology to address chronic disease burdens and reduce early mortality across the North. Uniting experts from academia, NHS and industry CHC is improving services for patients and building public partnerships founded on trust and transparency. Funded by the Department of Health and commissioned by the Northern Health Science Alliance (NHSA), The University of Manchester coordinates four CHC regions located in the North East and North Cumbria, the North West Coast, Greater Manchester and Yorkshire. www.connectedhealthcities.org @CHCNorth #DataSavesLives
The Farr Institute The Farr Institute is a UK-wide research collaboration involving 21 academic institutions and health partners in England, Scotland and Wales. Publically funded by a consortium of ten organisations led by the Medical Research Council, the Institute is committed to delivering high-quality, cutting-edge research using ‘big data’ to advance the health and care of patients and the public. www.farrinstitute.org @FarrInstitute #DataSavesLives