SLEx

This project aims to develop a database of SLE patients across Scotland in order to collect data including demographics, medical histories, treatments and outcomes on this patient group. It is envisaged that a better understanding of this condition will develop as a result of increased collaboration between the clinical sites. The ongoing auditing of the treatment and management of patients with Lupus should lead onto meaningful clinical and basic scientific research. In addition, this project intends to develop a registry of ‘research ready’ SLE patients who have given prior informed consent, in clinic, to be approached for future research projects from both the commercial and non-commercial sectors.

Chief Investigator: Dr Helen Harris

Number and location of participating sites (by region/ country): UK 6 sites

EudraCT number: n/a

ISRCTN number: n/a

Funder: Lupus UK

Start and End date

Of grant award: 30 Sep 2019 - 30 Sep 2024

Of recruitment: 05 Oct 2022

Current Status: Currently recruiting

Trial Website: 

Email: sir@ed.ac.uk

UK GDPR Privacy Statement: As part of the PIS

Sponsor: Accord, https://www.accord.scot/

Chief Investigator:

Dr Helen Harris, Consultant Rheumatologist

Western General Hospital, Crewe Road, Edinburgh EH4 2XU  E-mail: helenharris@nhs.net

Research Nurse:

Joanne Dobson, ECTU University of Edinburgh, Rm D38 2nd Floor OPD, Western General Hospital, Crewe Road South, EH4 2XU  Joanne.dobson@ed.ac.uk