Our Public Advisory Group (PAG)
Our PAG members are actively involved throughout the research life-cycle, from shaping grant applications to communicating results.
Engaging with and Involving the Public
The EAVE II Public Advisory Group (PAG) has fifteen members from a wide range of backgrounds and Patient Public Involvement (PPI) experience across Scotland, England and Wales. They are actively involved in:
- shaping our research grant applications;
- analysis design;
- project steering;
- results interpretation and dissemination;
- contributing to our understanding of the public's perspective of COVID-19.
Together we hold regular virtual meetings and two of our members sit on the Trial Steering Group.
What our PAG say about EAVE II
“It is more than clear that pandemics will continue to arrive in the future, and Scotland needs to be better prepared for these occurrences. I fully expect that EAVE II will form an essential cornerstone of that preparedness. Many future health benefits will arise from its ongoing deployment as an invaluable rich research resource of patient data.”
Using population data means that, as with PPI, more people’s stories get included. That makes any decisions based on the research not only more accurate, but also fairer – whether that is for people from an ethnic minority, people living with suppressed immune systems, or people living in more deprived areas of the country.
Click on our members to find out more about them, and hear why they got involved with EAVE II and PPI.
I am a retired Chartered Engineer who has been a lay member of a number of Asthma UK research projects over a period of several years. Most recently, I have been involved as both a Steering Group and PAG member, reviewing EAVE II research tasks.
I am a former mental health nurse. Due to a number of long term health conditions, I have been unable to work for a long time, but contributing as a volunteer to my community has always been important to me. I have been doing patient and public involvement work for nearly ten years and am involved in projects across the UK. I was keen to get involved with EAVE and the work being done having had COVID-19 myself.
I am a retired British Chinese and have lived in England for most of my adult life. Already living with a number of long term conditions, the threat of COVID-19 adds to my concern. I would therefore like to share my perspective to help researchers increase their understanding of people like me, bearing in mind, of course, I am still a unique person!
I have been doing patient involvement work with various charities for several years. I was keen to join the EAVE II team because it was a chance to work with research that was actually operating in real-time on a current situation.
I am an ex-service user of mental health services and Carer for my mother, who has physical and mental health conditions. I have been involved in in public and patient involvement in research for over 5 years.
I am a carer, living in London. I have been involved in a range of PPI activities, including use of patients' data in research, a very interesting area for me. I have also lost a family member to COVID-19. Due to their access to comprehensive data sets, EAVE ll are at the forefront of COVID-19 research, so I am very glad to have the chance to be involved.
By training and education, I am an 'English as a Foreign Language' teacher, but I have worked in different trades. Currently, I am a part-time postman and Polish interpreter. For many years, I have been ill with a few long-term diseases. Since July 2018, I have been a public contributor to medical research. My interests lie in all stages of the research cycle and different activities: focus groups, workshops, reviewing research proposals, improving patient-facing documents, and others.
I live with a rare auto immune disease and multiple long term conditions and was required to shield. I am an experienced public contributor and am committed to the value that Patient and Public involvement and insight adds to research. I enjoy working collaboratively with researchers to ensure that we are asking the right research question, analysing data in a meaningful way ,and disseminating the findings in a language that everyone understands. No one wants research to succeed more than people living with conditions, and this pandemic has brought home the absolute value of robust research and data.
I left my profession as a solicitor due to ill health. My interest in improving health care services led me to becoming an Improvement Research Fellow of North West London Collaborative Leadership in Applied Health Research Care. I am the current chair of Imperial Biomedical Research Center Public Advisory Panel and sit as a service user advisor on a quality improvement program board. I got involved with EAVE II because of my interest in using health care data for research and improving services.
I am a psychology graduate who has previously aided in research during my degree, e.g., assisting with the Human Vaccine Challenge project. My interest in joining the EAVE II Advisory Group was to further my research skills and gain more experience through an advisory panel.