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Survey to shape future dementia treatments

Researchers from the University of Edinburgh are asking people to take part in a new survey that could help shape future treatments for dementia.

Developed with Alzheimer’s Research UK, the Shaping Future Treatments survey asks for people’s views on the aspects of daily life that are most important to them, and which they would most like to protect if they were to develop a disease that causes dementia.

The results of the survey will be used to help inform regulators and healthcare decision makers who will be tasked with assessing the next dementia treatments. They will also be shared with researchers who are working to develop treatment approaches.

Leading cause of death

More than 850,000 people in the UK are currently living with dementia. The condition is caused by brain diseases, most commonly Alzheimer’s, which kill brain cells and impair the brain’s ability to function.

Alzheimer’s and other dementias are now the country’s leading cause of death.

New treatments

There are more than 240 potential new treatments for dementia in clinical trials, but there is little data available on what the general public wants to see from such a treatment.

The survey aims to address this challenge by collecting views from as many people as possible.

To take part in the survey, please visit shapefuturetreatments.org

The way we determine currently if a treatment works to help people at various stages of Alzheimer’s disease relies heavily on tests that may be of little direct relevance to an individual's sense of wellbeing. The Shaping Future Treatments survey will provide us all with fantastic and relevant insights into what matters most to people at risk of developing dementia.

Professor Craig RitchieStudy Lead from the University of Edinburgh’s Centre for Clinical Brain Sciences

Related links

Centre for Clinical Brain Sciences

Study at Edinburgh Medical School

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