New partnership to tackle MND

A World Cup winning rugby star is joining forces with leading researchers in a new partnership to tackle motor neurone disease (MND).

South African Joost van der Westhuizen - part of the victorious Springboks team of 1995 - is launching the collaboration with scientists from the University.

Research developments

The new partnership sees members and supporters of the player’s J9 Foundation meet experts from the University’s Euan MacDonald Centre for Motor Neurone Disease Research to discuss the latest developments in research.


In this video, Joost van der Westhuizen talks about the collaboration.

Solving the enormous challenge of MND or ALS requires partnership and collaboration. We are delighted to work with South African colleagues and the J9 foundation to promote better understanding of this devastating disease.
Professor Siddharthan ChandranDirector of the Euan MacDonald Centre for Motor Neurone Disease Research

Shared expertise

Scientists hope that in time the collaboration will bring benefit to MND patients as knowledge and expertise are shared.

Joost van der Westhuizen and Euan MacDonald both suffer from motor neurone disease, also known as amyotrophic lateral sclerosis (ALS), which is a progressive neurodegenerative disorder.

It leads to weakness and wasting of muscles, causing paralysis and difficulties with speech, swallowing and breathing.

Euan MacDonald Centre

We are delighted to welcome Joost and the J9 Foundation delegation to Edinburgh.
Euan MacDonaldformer keen rugby player

The Euan MacDonald Centre was established in 2006 by Donald MacDonald, a leading Scottish businessman, and his son Euan, who was diagnosed with ALS in 2003.

As well as providing specialist care linked to research, the Centre - the only one of its kind in Scotland - supports and undertakes cutting-edge research into MND. It also provides training opportunities for the next generation of research leaders.

The J9 Foundation

The former scrum-half set up the J9 Foundation, which provides support and care to ALS sufferers, their families and carers, following his diagnosis in 2011.

The J9 Foundation visit to Edinburgh is part of a 10-day stay in the UK aimed at raising awareness and funds to support those affected by MND.

Rugby great

When he retired from international rugby in 2003, Joost van der Westhuizen was the most capped South African player, with 89 Test caps and 38 Test tries, a record only recently broken.

Motor neurone disease can affect any adult at any age but is predominantly diagnosed in people over 40, with most cases reported in 50 to 70-year-olds.

This is going to be the most important tour of my life. We are not only raising awareness and funds, for the first time we are bringing international research partnerships home. In the beginning you go through all the emotions and you ask, ‘Why me?’ It’s quite simple, ‘Why not me?’ If I have to go through this to help future generations, why not me?
Joost van der Westhuizen