Myalgic Encephalomyelitis (ME/CFS) Genetics Research Symposium

About this event

Join us to help accelerate genetic research into Myalgic Encephalomyelitis (ME/CFS).

Action for M.E. and the University of Edinburgh Human Genetics Unit are delighted to invite you to the M.E. Genetics Research Symposium on 14 September 2022 in Edinburgh.

The symposium will bring together researchers interested in ME, people with ME, carers and potential funders to drive collaboration in this field and develop a 10 year programme of ME/CFS genetics research. The summit is open to anyone who would like to join us and is available at no cost. Adjacent quiet rooms are available for use throughout the day.

The event will be hybrid and you are welcome to join in person or remotely. Please see the programme for the day below.

Thank you for your interest in the event and we look forward to hopefully seeing you online or in person on the day.

Organisers: Sonya Chowdhury (Chief Executive, Action for M.E.) & Prof Chris Ponting (Investigator, MRC Human Genetics Unit)

PROGRAMME - S1.14 South Seminar Room

09.45: Registration

10.00 The Centre of Excellence vision, Prof Chris Ponting, Group Leader, MRC Human Genetics Unit, University of Edinburgh

10.10 The Power of Patient and Public Involvement (PPI): Sian Leary and Andy Devereux-Cooke, DecodeME PPI

10.30 "An immunogenetic study of ME/CFS patients": Marte Viken, Researcher, Oslo University Hospital

11.10 BREAK (refreshments will be provided for people attending in person)

11.30 Post-exertional malaise as a Chronic Ischaemia-Reperfusion injury in Long COVID and ME/CFS resulting from fibrin amyloid microclots: Prof Douglas Kell, Research Chair in Systems Biology, University of Liverpool

12.10 Dr Kenny Baillie, Snr Clinical Research Fellow in Anaesthesia & Critical Care, University of Edinburgh

12.50 Title TBC: Steve Gardner, CEO, PrecisionLife Ltd

13.30 LUNCH (lunch will be provided for people attending in person)

14.30 Workshops:

•  What would a 10-year programme of ME/CFS genetics research and follow up studies look like? How can we drive it forward?
•  How can we forge collaborative links with researchers who are not currently active in ME/CFS research?
• How do we ensure PPI is at the heart of future genetics research?

15.30 Plenary - feedback from workshops: Sonya Chowdhury, CEO, Action for M.E.

16.00 Close