School of Health in Social Science

Edinburgh Centre for Research on the Experience of Dementia

We are an interdisciplinary group of dementia researchers, people with dementia, dementia practitioners and representatives from a range of dementia organisations. We are interested in exploring and developing theories, methods and impact around the experience of living with dementia.

We work across the following core themes:

  • Social relationships and friendships, peer support, emotions and counselling
  • Living and dying with dementia
  • Dementia and design
  • Marginalised groups with dementia (including people with intellectual disabilities)
  • Risk and resilience
  • Working with people who have dementia to understand their experience and possible approaches to impact policy, practice and society.

Our aim for the Edinburgh Centre for Research on the Experience of Dementia (ECRED) is to create international social research and impact that prioritises the experience of dementia and strengthens global understanding of living with dementia. We provide a research and learning environment that creates opportunities for the sharing of knowledge and skills focusing on improving the lived experience of dementia, the perspective of the person with dementia is central to this work. We have a strong and active commitment to interdisciplinary working and many of our current projects include collaborations with researchers, clinicians and practitioners in a range of practice settings, with voluntary sector organisations and with other academics throughout the UK and internationally as well as across disciplines of social work, counselling, nursing, psychology, philosophy, geography and social policy.



The latest ECRED blog post: Creatively Exploring ECRED’s Vision and Goals

Let's Talk Podcast with Martha Pollard The Let's Talk podcast is a new series hosted by our Chaplain, Harriet Harris, bringing together different members of the University community to have honest and thought-provoking conversations about a range of mental health topics.

This episode features Martha Pollard, a PhD student the School working with ECRED on Alzheimer and Dementia Research. Martha tells us about the challenges of lockdown for those living with dementia and for their carers, especially now that they are unable to get the company and respite of meeting in groups, or of receiving specialist care in their homes. Listen to this Let's Talk Podcast.

20 years of activism by people with dementia in Scotland honoured The Life Changes Trust is today publishing a landmark book, ‘Loud and Clear’, which tells the story of how people living with dementia in Scotland have become activists and influencers in their own right over the last twenty years.  Read the full news story here.



Projects, people and updates 


bold Scotland is a five-year project and stands for Bringing Out Leaders in Dementia. It is an innovative, creative and interactive social leadership programme for people across Scotland which recognises that across Scotland many people of all ages and from all walks of life, including persons living with dementia, are already taking a lead, making a difference and finding their place in the ‘dementia world'.

A Public Inconvenience

Finding solutions which maximize the design and findability of accessible toilets when travelling. The aim is to explore and define the needs of disabled people with a range of impairments to use toilet facilities while travelling.

The 'New Dementia'

Widening Choices for People with Dementia addresses an emerging and substantial issue in relation to suitable housing options for people with dementia who have received an early diagnosis and have been living with dementia for five-plus years.

Thistledown Project

The aim of this research project is to develop practical and ethically sound guidance on the conduct of ethnographic research within a population of individuals who have dementia.

Showing the Way

Showing the Way was a research collaboration between ECRED and HammondCare that explored how people with dementia understand and use signage.


Our people from academic staff to PhD students, centre partners and knowledge exchange fellows.

The ECRED blog