School of Health in Social Science

Edinburgh Centre for Research on the Experience of Dementia

We are an interdisciplinary group of dementia researchers, people with dementia, dementia practitioners and representatives from a range of dementia organisations. We are interested in exploring and developing theories, methods and impact around the experience of living with dementia.

We work across the following core themes:

  • Social relationships and friendships, peer support, emotions and counselling
  • Living and dying with dementia
  • Dementia and design
  • Marginalised groups with dementia (including people with intellectual disabilities)
  • Risk and resilience
  • Working with people who have dementia to understand their experience and possible approaches to impact policy, practice and society.

Our aim for the Edinburgh Centre for Research on the Experience of Dementia (ECRED) is to create international social research and impact that prioritises the experience of dementia and strengthens global understanding of living with dementia. We provide a research and learning environment that creates opportunities for the sharing of knowledge and skills focusing on improving the lived experience of dementia, the perspective of the person with dementia is central to this work. We have a strong and active commitment to interdisciplinary working and many of our current projects include collaborations with researchers, clinicians and practitioners in a range of practice settings, with voluntary sector organisations and with other academics throughout the UK and internationally as well as across disciplines of social work, counselling, nursing, psychology, philosophy, geography and social policy.

The ECRED blog

This a space to facilitate being closer to you and to share the research conducted worldwide and at the University of Edinburgh in line with the core themes mentioned above. We want people affected with dementia and those around them to live well with dementia. This blog will be written without jargon in a friendly informal style and backed up with an evidence-based framework. You are welcome to comment and interact with us! Click here to visit our blog now 

 

The Dementia Centre Hammond Care logo

 

Projects, people and updates 

 

Transport and Toilets

Finding solutions which maximize the design and findability of accessible toilets when travelling. The aim is to explore and define the needs of disabled people with a range of impairments to use toilet facilities while travelling.

The 'New Dementia'

Widening Choices for People with Dementia addresses an emerging and substantial issue in relation to suitable housing options for people with dementia who have received an early diagnosis and have been living with dementia for five-plus years.

Thistledown Project

The aim of this research project is to develop practical and ethically sound guidance on the conduct of ethnographic research within a population of individuals who have dementia.

Showing the Way

Showing the Way was a research collaboration between ECRED and HammondCare that explored how people with dementia understand and use signage.

People

Our people from academic staff to PhD students, centre partners and knowledge exchange fellows.

NEWS: Game-changing investment in people affected by dementia

A ground-breaking investment of £2.5 million has been announced...