Edinburgh Centre for Research on the Experience of Dementia
We are an interdisciplinary group of dementia researchers, people with dementia, dementia practitioners and representatives from a range of dementia organisations. We are interested in exploring and developing theories, methods and impact around the experience of living with dementia.
We work across the following core themes:
- Coproduction and participatory research
- Creativity and arts-based approaches, interventions and methods
- Social relationships and friendships, peer support, emotions and counselling
- Living and dying with dementia
- Dementia and design
- Marginalised groups with dementia (including people with intellectual disabilities)
- Working with people who have dementia to understand their experience and possible approaches to impact policy, practice and society
Our aim for the Edinburgh Centre for Research on the Experience of Dementia (ECRED) is to create international social research and impact that prioritises the experience of dementia and strengthens global understanding of living with dementia. We provide a research and learning environment that creates opportunities for the sharing of knowledge and skills focusing on improving the lived experience of dementia. The perspective of the person with dementia is central to this work. We have a strong and active commitment to interdisciplinary working and many of our current projects include collaborations with researchers, clinicians and practitioners in a range of practice settings, with voluntary sector organisations and with other academics throughout the UK and internationally as well as across disciplines of social work, counselling, the arts, nursing, psychology, philosophy, geography, and social policy.
The latest ECRED blog post: INCLUDED workshop 3: Exploring Ways To Include People Living with Advanced Dementia as Co-Researchers
Let's Talk Podcast with Martha Pollard The Let's Talk podcast is a series hosted by our Chaplain, Harriet Harris, bringing together different members of the University community to have honest and thought-provoking conversations about a range of mental health topics.
This episode features Martha Pollard, a PhD student the School working with ECRED on Alzheimer and Dementia Research. Martha tells us about the challenges of lockdown for those living with dementia and for their carers, especially now that they are unable to get the company and respite of meeting in groups, or of receiving specialist care in their homes. Listen to this Let's Talk Podcast.
20 years of activism by people with dementia in Scotland honoured The Life Changes Trust by publishing a landmark book, ‘Loud and Clear’, which tells the story of how people living with dementia in Scotland have become activists and influencers in their own right over the last twenty years. Read the full news story here.