Fundraise Your Way

Wenda Gray

CJD (Creutzfeldt-Jakob Disease) is a rare illness. It is currently untreatable and ultimately fatal. When Wenda's husband died of Sporadic CJD just two weeks after being diagnosed, she felt compelled to raise money to further research into this awful disease.

Name Wenda Gray
Cause fundraised for

Creutzfeldt-Jakob disease (CJD) Research

Method of fundraising

Gig for Grayso’

The Gray Family

Why did you decide to fundraise for your chosen cause?

My husband, Alan Gray, died with Sporadic CJD just two weeks after being diagnosed (on 28 July 2018). As CJD is a relatively unknown disease, my four children and I decided to channel our grief into raising as much money as we could for the CJD Research and Surveillance Unit within the University of Edinburgh. In doing this, we also wanted to raise awareness of this fatal disease.

How did you raise money?

Alan had been a member of our local Golf Club since he was a young boy, so this was the obvious choice to hold our ‘Gig for Grayso’.  We promoted this through social media (Facebook) and received a terrific response. Tickets were £5 and we asked family and friends to donate prizes for a ballot. My family is well known in our town and we were privileged to get vouchers and donations from many small businesses within our community. We were also very lucky to get some fabulous items that we could auction. The feedback we have received has been great with everyone saying what a brilliant night it was. The total amount raised is an unbelievable £9,000.  We are so grateful for all the support we received from family, friends, colleagues and members of Carrickfergus Golf Club. We are also extremely grateful to all who donated through the JustGiving page set up by Alan’s long-time friend Andy Rice. 

Fundraising wisdom

Be organised, plan your event well in advance and don’t be too proud to ask for help - working as part of a team will not only be enjoyable but rewarding.

Related Links

The National CJD Research and Surveillance Unit (NCJDRSU)

CJD study - explanation video