Access our resources
Interested in gaining access to our research data? Read more here about requesting access and see details about our access policies.
To view or gain access to data, please follow the steps outlined below. We're taking a little longer than usual to respond to enquiries due to the Coronavirus (COVID-19) pandemic, so please bear with us. We will endeavour to get back to you as soon as we can.
Researchers are encouraged to get in touch at an early stage of project planning. To help design studies, Generation Scotland summary data can be viewed on request by contacting email@example.com.
Once a project is agreed, applicants should fill out a collaboration proposal form. There is one form for Generation Scotland access and another for CovidLife access. If you would like to access our resource, please complete the relevant form(s) below:
If you would like access any of the data from our CovidLife projects, please us the form below:
Please note: We are not currently able to conduct recontact of Generation Scotland volunteers.
Upon submission, these forms are reviewed by the Generation Scotland Access Committee , which meets regularly. Our aim is to review applications within 6-8 weeks of submission, but typically sooner. Please contact us for the next meeting deadline at firstname.lastname@example.org or on 0131 651 8518. Applicants are notified of the decision no later than 2 weeks after the meeting.
Data Transfer Process
If approved, each project is subject to a Data & Materials Transfer Agreement (DMTA) or commercial contract. It will need to be signed on behalf of the recipient institution. After the DMTA/contract has been signed, materials and/or data can be released. For your reference, you can view this below. You do not need to fill in this form. A DMTA specific to your study will be sent to you if it is approved.
Prices start at:
|Generation Scotland phenotype data||£2500|
|Genome Wide Association or DNA methylation data||£2500|
|Linked NHS data||£5000|
|Samples||Price on Application|
Please note: The CovidLife data charge is waived for PhD/MSc student research
If you would like to discuss costings further, please contact us at email@example.com.
Access by International Researchers
Generation Scotland has consent for data to be used by researchers from around the world for medical research. However, the original consent given by Generation Scotland participants did not allow us to send samples to researchers in countries other than the UK. We have since approached all Scottish Family Health Study participants seeking explicit consent to allow samples to be sent to researchers outside the UK, subject to the same ethical scrutiny as all other uses of Generation Scotland resources. The great majority of those who responded gave their consent.
Our policy explains procedures for managing access and the publication of data from Generation Scotland resources, which is used to guide the Access Committee. The policy follows on from the Generation Scotland Collaboration Agreement. We welcome feedback from potential users and other interested parties. Please e-mail firstname.lastname@example.org to give your feedback.
PDF Downloads of GS Access Policy
The Generation Scotland Executive gratefully acknowledges the ALSPAC (Avon Longitudinal Study of Parents and Children) Access Policy, on which the Generation Scotland Collaboration Agreement and the Management, Access and Publication Policy are based.
For more information, please e-mail email@example.com or call our office on 0131 651 8740.
Data Management and Linkage Policy
A unique study ID was applied to our data and samples at the point of collection. Personal information for study participants is held separately from all other study data, along with an encrypted version of the Communit Health Index. The key to the encrypted Community Health Index linkage is held in the NHS system and is not accessible by Generation Scotland. This process is described in the Data Access and Linkage Plan.
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