Generation Scotland

Access our resources

Interested in gaining access to our research data? Read more here about requesting access and see details about our access policies.

Application form

Please be advised our data portal is currently down. To view or gain access to data, please follow the steps outlined below. We are also taking longer than usual to respond to enquiries due to the Coronavirus (COVID-19) pandemic. We will endeavour to get back to you as soon as we can.

Researchers are encouraged to get in touch at an early stage of project planning. To help design studies, GS summary data can be viewed on request by contacting access@generationscotland.org

Once a project is agreed, applicants should fill out a collaboration proposal form. There are two forms. If you would like access to Generation Scotland resources please use the form found below:

 

If you would like access any of the data from our CovidLife projects, please us the form below:

 

Please note: We are not currently able to conduct recontact of GS volunteers.

Upon submission, these forms are reviewed by the GS Access Committee (GSAC), which meets regularly. Our aim is to review applications within 6-8 weeks of submission, but typically sooner. Please contact us for the next meeting deadline at access@generationscotland.org or on 0131 651 8740. Applicants are notified of the decision no later than 2 weeks after the meeting.

If approved, each project is subject to a Data & Materials Transfer Agreement (DMTA) or commercial contract. It will need to be signed on behalf of the recipient institution. After the DMTA/contract has been signed, materials and/or data can be released. For your reference, you can view this below. You do not need to fill in this form. A DMTA specific to your study will be sent to you if it is approved.

Access Policy

Folders with paper documents

Our policy explains procedures for managing access and the publication of data from GS resources, which is used to guide the Access Committee. The policy follows on from the Generation Scotland Collaboration Agreement. We welcome feedback from potential users and other interested parties. Please e-mail access@generationscotland.org to give your feedback.

PDF Downloads of GS Access Policy

 

The Generation Scotland Executive gratefully acknowledges the ALSPAC (Avon Longitudinal Study of Parents and Children) Access Policy, on which the GS Collaboration Agreement and the Management, Access and Publication Policy are based.

For more information, please e-mail access@generationscotland.org or call our office on 0131 651 8740.

Data Management and Linkage

A unique study ID was applied to our data and samples at the point of collection. Personal information for study participants is held separately from all other study data, along with an encrypted version of the CHI. The key to the encrypted CHI linkage is held in the NHS system and is not accessible by GS. This process is described in the Data Access and Linkage Plan.

Access by International Researchers

GS has consent for data to be used by researchers from around the world for medical research. However, the original consent given by GS participants did not allow us to send samples to researchers in countries other than the UK.  We have since approached all Scottish Family Health Study participants seeking explicit consent to allow samples to be sent to researchers outside the UK, subject to the same ethical scrutiny as all other uses of GS resources. The great majority of those who responded gave their consent.

You might also be interested in:

Generation Scotland

CovidLife

Our Resources