Endometriosis

Welcome

Providing you with up-to-date factual information about endometriosis and possible treatments.

Welcome to the EXPPECT Endometriosis Service

The EXPPECT Endometriosis Service consists of a multidisciplinary team that aims to provide state-of-the-art, high quality, evidence based and patient-centred treatment for the management of all grades of endometriosis.

The British Society of Gynaecological Endoscopy (BSGE) has recently set up accredited centres for the laparoscopic treatment of advanced endometriosis to enable high standards of care to be delivered to women with endometriosis. Edinburgh achieved BSGE accreditation in January 2015.

This website has been designed by Christopher Graham with the support of EXPPECT Endometriosis clinic staff at NHS Lothian and the University of Edinburgh.


EXPPECT in the news

South Korean and US researchers say that the infertility seen in some women with endometriosis could be linked to the deficiency of a protein in the womb: The Guardian article and Research Article

In this The Guardian article, Professor Horne highlighted that while women with endometriosis may take longer to become pregnant than those without the condition, or be less likely to conceive, this does not mean that infertility is a foregone conclusion:

Endometriosis can be associated with difficulties becoming pregnant, but even women with severe endometriosis can still have a baby naturally.

Professor Andrew Horne

Endometriosis: The Experts’ Guide to Treat, Manage and Live Well with Your Symptoms - Book Cover

Endometriosis: The Experts' Guide

Professor Andrew Horne and Carol Pearson have co-authored a practical patient guide to endometriosis

Launched on 5th March 2018, "Endometriosis: The Experts’ Guide to Treat, Manage and Live Well with Your Symptoms" written by Professor Andrew Horne and Carol Pearson (Endometriosis UK Patient Leader) is available from Amazon.

Moneys raised by book sales will go to Endometriosis UK.


Support for EXPPECT

Endo Warriors Cheque Presentation

Support from Endo Warriors

EXPPECT were delighted to receive a generous donation for our research into improving the care of women with endometriosis from the Endo Warriors.

Candice and Claire presented the cheque to Andrew and Philippa, on behalf of Endo Warriors, on Monday 29 July.

Thank you to Endo Warriors and everyone who took part in the fundraising!

 


£100,000 for pain management research from The Charles Wolfson Charitable Trust

The Charles Wolfson Charitable Trust has donated £100,000 to EXPPECT to support our research into pain management for women with endometriosis.

The Charles Wolfson Charitable Trust is a charity awarding grants to support the fields of medicine, education and welfare.

Professor Andrew Horne explains how this donation will support EXPPECT's vital research into endometriosis in an Edinburgh Friends magazine article

The £100,000 from The Charles Wolfson Charitable Trust will cover the cost of a research scientist who will work with us to identify potential drug targets that could lead to a better way of managing pain and related symptoms

Professor Andrew Horne(Adapted from Edinburgh Friends magazine article)

Funding for a prescribing physiotherapist

Edinburgh and Lothians Health Foundation

The Edinburgh and Lothians Health Foundation has approved funding to pilot a prescribing physiotherapist at EXPPECT.

The Edinburgh and Lothians Health Foundation aims to improve the physical and mental health of the people of Scotland, in particular in Edinburgh and the Lothians. It provides funding and makes grants to support projects and initiatives not normally funded by the health service.


Women’s Health CPG Event - Andrew Horne and Emma Cox

EXPPECT in the Scottish Parliament

In early December 2018, Professor Horne and Emma Cox (CEO of Endometriosis UK) met with Sinead Griffin, from the office of Monica Lennon MSP, to discuss ways to ensure better endometriosis care and research in the context of the Women's Health Cross-Party Group (CPG) of the Scottish Government.


Thank you

We would like to acknowledge and thank Andrea, a local lady with endometriosis, whose fundraising has made this website a reality.  

Andrea had persisted with medical management for 2 years before discussing the option of a hysterectomy with her medical team.  This has been the right decision for her and she notices a huge difference in her pain levels.

“I was so grateful for the superb care and attention that I wanted to ‘ give something back’. With the help of my friends I organised a champagne afternoon tea in aid of EXPPECT Edinburgh and Endometriosis UK.

The afternoon was a great success, with a super raffle, online auction and lots of cakes! We raised over £500 and perhaps more importantly raised lots of awareness between women who knew very little of this debilitating disease.”