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Information for patients

Useful help and advice

What happens at our clinic?

Who runs the clinic, what is involved in clinic appointments and how to prepare, and next steps after clinic are summarised here.

About endometriosis

Endometriosis is a common chronic inflammatory condition. Its cause, associated symptoms, diagnosis and treatment are explored here.

Medical and self-care advice for NHS Lothian patients with endometriosis

An information resource to guide you about some of the current recommendations on endometriosis medical treatments and offer strategies for managing some of the associated symptoms.

Patient information sheets

EXPPECT and other information leaflets are found here.

Helpful links

The following links are recommended by Endometriosis UK, women with endometriosis, and endometriosis specialists.

Symjo - Symptom Journal

Symjo is a symptom journal for chronic conditions, created by Megan Raine [*please note: the Symjo website and ordering are currently unavailable*]

Acupuncture for Chronic Pelvic Pain in Women

This pain management resource bridges the divide between Chinese medicine acupuncture and biomedicine treatments.

Endometriosis Support Groups

Support from Endometriosis UK, Endo Warriors West Lothian, and Endometriosis South of Scotland.

Patient Representatives

Meet our patient representatives, Sarah Hinks and Tao McCready

Feel Free Pain Programme

An online programme for pelvic pain and bladder pain patients.